[HTML][HTML] … complicated cases”: health practitioners' perspectives and practices of providing end-of-life care for people with profound intellectual and multiple disability

H Voss, A Loxton, J Anderson, J Watson - BMC palliative care, 2021 - Springer
… the value of decision-making autonomy at the end of life, in creating a “… Qualitative results
highlighted a diverse range of health … study are not publicly available due to privacy and ethical

End-of-life care supports and decision-making practices in specialist intellectual disability residential services

C Dalton - 2019 - cora.ucc.ie
Qualitative content analysis techniques were used to analyse the data gleaned from … making
at end of life from an ethical and legalistic perspective. The principle of relational autonomy, …

End-of-life issues and support needs of people with profound intellectual and multiple disability

H Voss, J Watson, MJ Bloomer - End of life and people with intellectual and …, 2022 - Springer
… To date, research focussed on end-of-life care and support … (AAIDD) highlights respect for
autonomy as one of four major … intellectual disabilities in the Netherlands: A qualitative study. …

The practice of mutual protection in the care of children with palliative care needs: a multiple qualitative case study approach from Jordan

M Atout, P Hemingway, J Seymour - Journal of Pediatric Nursing, 2019 - Elsevier
… Therefore, any future intervention planned for them should respect parents' autonomy and
… She mentioned that she preferred not to inform children or even teenagers about end of life

[DOC][DOC] A multiple case study to explore the views and experiences of young people, their parents and carers, and healthcare professionals of the advance care …

B Hughes - 2019 - research.edgehill.ac.uk
… Method: A qualitative research design was employed to recruit … of loss of self at the end of
life; acknowledging the prospect of death … patientstreatment preferences are respected during …

[图书][B] “We Just Want to Say Goodbye”: An Arts-Informed Multicase Study Exploring Resident Experiences of Death Care Practices in Long-Term Care Communities

MC Olson - 2019 - search.proquest.com
… have become prized, it was interesting that autonomy to … and respecting the voices of elders
as well as those working … in RCHs, hospice, palliative care, and end-of-life care, so intensive …

Factors Influencing Palliative and End-of-Life Care for Adults with Intellectual Disabilities: A Scoping Review of Health and Care Workers' Experiences

R Couvrette, É Milot, G Fortin - … in End-of-Life & Palliative Care, 2024 - Taylor & Francis
… and end-of-life care from the perspective of health and care workers … Respecting autonomy
in the end-of-life care of people with intellectual disabilities: A qualitative multiple-case study

Communication strategies and persuasion as core components of shared decision-making for children with life-limiting conditions: a multiple case study

E Popejoy, K Almack, JC Manning… - Palliative …, 2022 - journals.sagepub.com
… the options 17 and increase autonomy, by raising awareness … identified in end-of-life decisions
in paediatric intensive care. … conflicts of interest with respect to the research, authorship, …

'Intensive palliative care': a qualitative study of issues related to nurses' care of people with amyotrophic lateral sclerosis at end-of-life

S Daneau, A Bourbonnais, É Allard… - Palliative care and …, 2023 - journals.sagepub.com
… A qualitative multiple-case study design proposed by Stake 8 … Her autonomy was very
important to her, and it was decreasing … at end-of-life, through demands that nurses respect the …

Specialist palliative care staff's varying experiences of talking with people with intellectual disability about their dying and death: A thematic analysis of in-depth …

B Foo, M Wiese, B Curryer, RJ Stancliffe… - Palliative …, 2021 - journals.sagepub.com
… [hospital team caring for the dying person] or we will do the end-of lifeperson’s right to
autonomy 61 can be complex. This complexity may present an ethical dilemma for palliative care